Jessie May was just 4½ months old when she died from a genetic condition. Her family were visiting relatives when they learnt that there was no support for families like them to care for their children at home in the Bristol area. She died peacefully at home, surrounded by all those who loved her. Her parents were determined other families would have that choice, and launched the Jessie May Trust in 1996.
Now in its 21st year, Jessie May has grown significantly, working with around 130 terminally ill children and their families, including many young carers.
Jessie May helps siblings of terminally ill children with free respite support visits from their professional nurses. Many young carers help to care for their terminally ill brother or sister from a young age. For three hours at a time Jessie May's professional nurses take over the sole care of the ill child, giving parents and siblings quality time to be together, catch up, have fun - simple things which are hard to do, given the pressures of caring for a child with complex medical needs.
This helps build resilience to cope despite the enormous pressures they face. It gave young carers a break from looking after their brother or sister and the chance to have quality time with mum and dad - time when they have their undivided attention for a few hours. These are ordinary people, trying to live ordinary lives, but in the most extraordinary of circumstances.
- @greenekingcares We are referring to the incredible Triple Chocolate Brownie, with chocolate sauce and chocolate ic… t.co/yrPeGaFF5P
- @greeneking @ChefandBrewer Our team havn't stopped talking about your triple chocolate brownie after the christmas… t.co/WSrMK0i9SO
- @acornsnurseries Good to see you are all wrapped up warm! Thank you for going the distance for us!!
- This morning we had a visit from the lovely Oliver on behalf of @wpduk, who presented a cheque for £500 to… t.co/3zWsCBmjPf
- The #JessieMay Mince Pie Drop-In is tomorrow! 🌟 Come along to our Kingswood office for a yummy mince pie, a tea or… t.co/A7lvFjaoLX